Get ready for a sweatshirt drop! Date:TBD @md_designsandmore on instagram and facebook!
Explanation from a cystic fibrosis site, The “65 Roses” story dates back to 1965 when an observant 4-year-old, hearing the name of his disease for the first time, pronounced cystic fibrosis as “65 Roses.” Today, “65 Roses” is a term often used by young children with cystic fibrosis to pronounce the name of their disease.
Ever since I was a little girl, I’ve always had a little tickle cough. My diagnosis, which was originally just “allergies”, was finally figured out at the age of 6. After years of my parents trying to navigate what was wrong with me, a family doctor asked if we had a history of cystic fibrosis in the family. My mom immediately said “no”, not thinking anything of her distant cousin who was sick quite often.
Eventually, we found out that Marcia (my mom’s cousin) had cystic fibrosis as well. Marcia was such a role model within our lives. She provided guidance and support, no matter the questions asked. The things that nobody would talk about out loud, were the topic of our conversations. My mom could ask her for advice and she’d respond within the hour. Heaven gained Marcia as an angel in 2019. Missing her and the advice she had will never fade away. OR I’ll always miss Marcia and the wise advice she had.
We found out my genes have two mutated copies of the CFTR gene. CFTR stands for cystic fibrosis transmembrane conductance regulator. Wow! That’s a mouthful. If I’m being honest, in my 14 years of knowing I have cf, I’ve never typed that out until now.
When we finally realized what was wrong, cf therapy treatments have been a daily occurrence throughout life. Getting up extra early for treatments is the usual for me! I’ve learned to multitask while being hooked up to treatments. Throughout grade school, I would read, write, and type while I was doing treatments! That’s talent. The cystic fibrosis vest shakes and helps loosen thick mucus in the lungs. Nebulizers are also done with it to help open the airways!
Cystic Fibrosis Facts:
- About 1/30 people in the U.S. carry the cf gene.
- Cf warriors sweat out more salt than the average person.
- Every single cf fighter has a different story.
❥ Cf warriors out there, Keep fighting! I believe in you!
Xoxo,
Dannika Weelborg